You’re not an imposter because your Celiac experience looks different

I used to think having Celiac disease was so bad that you ended up in hospital with an IV attached to you.

For some people that does happen, but I learned over the years that is more the exception than the rule. These people have often have un diagnosed CD, until they landed up in hospital on a drip, often with malnutrition. It is only then they find out it’s due to Celiac Disease.

Then there are others who have the most awful symptoms…constant diarrhea, vomiting and maybe you did not experience either of these symptoms. It can make you feel like you don’t really have Celiac Disease and you can doubt your own condition.

Celiac Disease does not present the same way for everyone.

Things have changed. There was a time when Doctors would dismiss you if you did not have weight loss, diarrhea and vomiting as symptoms, but now days, most people know that you even get Silent Celiac Disease in which you can be asymptomatic.

A lot of people also just have varying symptoms, some experience more neurological symptoms than digestive symptoms.

Celiac disease also is indiscriminate of age. Children right through to the very aged develop Celiac Disease.

One thing too that can cause you to feel like an imposter is if you did not have a biopsy. Some people find this really hard to accept that if you tell them you have Celiac disease but never had a biospy, well then you can’t really be a Celiac.

The fact is that there are certain situations in which a medical health provider will decide either not to offer a biospy (in which case you were not given the choice) or it is deemed unnecessary due to a variety of reasons. At the end of the day, if a health care provider has made that call and you have been diagnosed with Celiac disease, who is anyone, including yourself to say that you are an imposter?

Want to know more about managing life with Celiac Disease?

Take my new Clueless to Confident Celiac Course launching on the 21 March


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